PCOS affects 1 in 8 women globally, yet limited research and health professional education has led to underdiagnosis, under treatment, and few dedicated models of care. Patients worldwide report delayed diagnosis, insufficient provider knowledge, dissatisfaction with care, and misinformation, especially through social media. These challenges are partly due to the misleading name ‘polycystic ovary syndrome’.
How You Can Contribute?
The name will be changed and we invite you to engage in this global effort by sharing your perspectives on:
- Principles that should guide the new name.
- Naming preferences, including previously proposed options from the literature and international surveys and any new options that best reflect the nature of the condition
Are you, an individual with PCOS, family member and support person/group or a healthcare professional/ researcher? This survey can only be completed once by each participant.
Take the Monash University survey and have your say.
Note: The survey has been translated into Persian and Malaysian, with Hindi, German, and Mandarin coming soon.
Contact: info.mchri@monash.edu
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